Around 1,000 patients with rare diseases registered with Centres of Excellence, LS told

NEW DELHI: (Mar 28) Around 1,000 patients diagnosed with rare diseases are registered with the Centres of Excellence, Minister of State for Health and Family Welfare Prataprao Jadhav informed Lok Sabha on Friday.

In a written reply, he said Rs 118.82 crore was allocated for treatment of rare diseases in the financial year 2024-25 and Rs 299.59 crore for 2025-26.

“Health being a state subject, the primary responsibility of providing healthcare services is that of state governments. However, to mitigate the challenges posed by rare diseases in India, the Union Ministry of Health and Family Welfare has framed National Policy for Rare Diseases (NPRD), 2021,” Jadhav said. PTI